Horizon Usher Foundation remote jobs and company guide

Horizon Usher Foundation is a non-profit foundation founded in 2022 to support cutting-edge research into Usher syndrome and retinitis pigmentosa. Their mission is to raise funds and accelerate medical research to help find a treatment, through the creation of projects and events. Usher syndrome is a rare genetic inherited condition that affects both hearing and sight - children are born with hearing loss or deafness, and the condition also causes retinitis pigmentosa, a degenerative eye disease that leads to gradual vision loss and, ultimately, blindness. The foundation operates from Barcelona and was created by Benjamin Demarquilly, an international model and osteopath who is personally living with retinitis pigmentosa. What began as his personal journey and the fulfillment of a dream became an initiative to raise awareness for those affected by Usher syndrome and retinitis pigmentosa, and to give them hope. The foundation creates projects and events across different artistic disciplines including fashion, film, gastronomy, and more, in collaboration with brands and institutions to raise funds and support research. They are convinced that awareness and advocacy can move things, change mindsets, and that creativity can open doors to horizons that seem unreachable.

The foundation began after Benjamin launched his first project: a symbolic crossing of the Atlantic Ocean, sponsored by Giorgio Armani, which turned his personal diagnosis into a public statement. Usher syndrome affects about 1 in 30,000 people worldwide and is the leading cause of combined hearing and vision loss. Through various artistic and adventurous projects, Horizon Usher Foundation aims to shed light on these invisible diseases, support research, and bring hope to everyone living with retinitis pigmentosa and Usher syndrome. The foundation uses art, fashion, travel, and adventure as vehicles to share their message, raise awareness, and fund research.